Systemic sclerosis (scleroderma)

Alternative names:

CREST syndrome; progressive systemic sclerosis; scleroderma

Treatment:

see scleroderma treatment

Support groups:

The stress of illness can often be helped by joining a support group where members share common experiences and problems. See systemic sclerosis (scleroderma) - support group.

Expectations (prognosis):

In the majority of those affected, the disease is progressive. In some, remission occurs with a slow progression. People who only have skin involvement have a better prognosis (probable outcome). Death may occur from gastrointestinal, cardiac, kidney, or pulmonary (lung) involvement.

Complications:

• cardiac failure
• renal failure
• pulmonary fibrosis
• malabsorption (inadequate absorption of nutrients from the intestinal tract)

Calling your health care provider:

Call for an appointment with your health care provider if symptoms of this disorder are present.

Call your health care provider if you have scleroderma and symptoms become worse, or if new symptoms develop.