Interstitial Cystitis
Alternative names:
cystitis - interstitial
Treatment:
There are no standard or consistently-effective treatments for interstitial cystitis. Results vary from individual to individual.
Some of the treatments that are tried include: - DMSO (dimethylsulfoxide, a medication that reduces inflammation) instilled into the bladder
- dilatation of the bladder by hydrostatic pressure (water pressure)
- Chlorapactin instilled into the bladder
- silver nitrate instilled into the bladder
- antidepressants (may have a pain-relieving effect, also helpful for the depression that often accompanies this disorder)
- antispasmodics
- antibiotics (usually not helpful unless there is also a bladder infection)
- surgery
- experimental drugs (Elmiron, Nalmefene)
Support groups:
A support group may provide you with answers to your questions. Contact the Interstitial Cystitis Association (ICA) for a local group. On the - East cost, write to: ICA PO Box 1553 Madison Square Station New York, NY 10159
- On the West coast, write to:
ICA PO Box 151323 San Diego, CA 92115
Expectations (prognosis):
Treatment results vary. Some people respond well to simple treatments. Others may require extensive treatments and rarely surgery to relieve symptoms.
Complications:
- chronic pain which may cause a change in lifestyle
- emotional trauma
- high costs associated with frequent medical visits
- chronic depression (and accompanying suicidal thoughts)
- adverse effects of treatments (depending on the treatment tried)
Calling your health care provider:
Call for an appointment with your health care provider if you have symptoms suggestive of interstitial cystitis. Be sure to mention that you suspect this disorder; it is not well-recognized nor is it easily diagnosed.
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