Facioscapulohumeral muscular dystrophy (Landouzy-Dejerine)

Alternative names:

facioscapulohumeral

Treatment:

There is no known cure for facioscapulohumeral muscular dystrophy. Treatment is aimed at control of the symptoms to maximize the quality of life. Activity is encouraged. Inactivity (such as bedrest) can worsen the muscle disease. Physical therapy may be helpful to maintain muscle strength.

Genetic counseling may be advised before having children.

Expectations (prognosis):

Progressive disability occurs very slowly with facioscapulohumeral muscular dystrophy. The patient's disability is often minor and life span is usually not affected.

Complications:

• permanent, progressive disability
  • decreased mobility
  • decreased ability to care for self

• deformities

Calling your health care provider:

Call for an appointment with your health care provider if symptoms indicate facioscapulohumeral muscular dystrophy may be present.

Call for an appointment with your health care provider if you are planning a family and facioscapulohumeral muscular dystrophy has been diagnosed in yourself, your spouse, or family members.