Neurosarcoidosis

Alternative names:

sarcoidosis - nervous system

Treatment:

There is no known cure for the disorder. Treatment is indicated if symptoms are severe or progressive. The goal of treatment is to reduce symptoms.

Corticosteroids such as Prednisone are prescribed to reduce inflammation. They are often prescribed long-term, for months to years, or until symptoms subside. Other medications, particularly medications that suppress the immune system, may also be recommended.

Symptoms should be treated. For example, a numb body part should be protected from harm. Weak areas may require physical therapy or appliances to aid mobility and ability to function. Psychiatric disorders or dementia may require safety interventions, assistance with care, and other treatments. Pituitary disorders may respond to conventional treatments such as hormone replacement.

Expectations (prognosis):

The probable outcome is varies. Some cases resolve spontaneously in 4 to 6 months. Other cases continue intermittently for the rest of the person's life. About 5% of people with sarcoidosis of any type will die as a direct result of the disorder, most commonly when brainstem or heart involvement causes cardiac arrest.

Complications:

• permanent neurologic losses
• progressive neurologic losses
• brainstem involvement (rare, but life threatening)

Note: Complications are variable depending on which portion of the nervous system is involved and the response to treatment.

Calling your health care provider:

Call your health care provider if you have sarcoidosis and any neurologic symptoms occur.

Call your health care provider any time there is a sudden loss of sensation, movement, or function.