Xeroderma pigmentosa
Treatment:
Children with this condition require total protection from sunlight. In addition, light coming through window glass and light from fluorescent bulbs is also dangerous. When some sunlight exposure cannot be avoided, protective clothing should cover most of the skin surface. High protection (SPF 30 or greater) and very dark, UV-protected glasses should be worn.
Expectations (prognosis):
Most affected people die of malignancy before adulthood.
Complications:
Calling your health care provider:
Call for an appointment with your health care provider if you or your child has symptoms of xeroderma pigmentosa.
Call for an appointment with your health care provider if you have a family history of xeroderma pigmentosa and you are planning to have children; ask the provider about genetic counseling.
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