Marfan's syndrome
Treatment:
There is not a single curative treatment for this condition.
Visual defects should be corrected where possible. Care should be taken to prevent the development of scoliosis, especially during adolescence.
The cardiovascular abnormalities are the most worrisome. People with Marfan's should have preventive antibiotics before dental procedures in order to prevent endocarditis. Pregnancy in individuals with Marfan's needs to be monitored very closely because of the increased stress on the heart and aorta. Children should not be involved in maximal exercise programs or sports because of concern for aortic aneurysm.
Expectations (prognosis):
Lifespan is shortened somewhat because of cardiovascular complications. The survival is into the 40s but may be extended with good care and heart surgery.
Complications:
Calling your health care provider:
You have a family history of Marfan's syndrome and are considering having children. Also call if you child has symptoms suggestive of this syndrome.
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